I told them I had good insurance and that I'd take care of the bill after surgery (which is the arrangement I had with every other service provider for my thyroid cancer). On October 4th I had my first appointment with Su., the nutritionist, and she told me that looking at what lab results were in the system that my calcium, magnesium and potassium are all low. Is RAI 90MCI enough to take out 2 lymphnodes? It continued for maybe a couple of weeks and always took me by surprise. Don't get a ct scan ask for an ultrasound first. The surgery went well but do to low calcium and magnesium levels (parathyroid(s) where not fully functioning) I was kept in the hospital for 2 days to ensure my parathyroids were maintaining proper levels. The Effect of Head-Neck Stretching Exercises After Thyroidectomy on The https:// ensures that you are connecting to the The muscles in my neck aren't exactly . I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. 9 Mar 2011 1 year from having thyroid removed Another good point I did not have any hiccups from this surgery. So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous. How to Take Care of an Incision After Thyroid Surgery It's a mild annoyance to have to take it every morning, but I feel exactly how I did pre-surgery, and was able to go back to college and get through my hardest semester ever with no feelings of fatigue or anything. My time in the ICU was unpleasant, but only because I wasn't able to get any sleep the night before my surgery and the night I was there. I also had a total thyroidectomy in June (10 months ago) also due to Multi nodule goitre, I had many many nodes on my thyroid gland almost so many that doctors were surprised, and over a 10 year check up process initially from 4 nodes increasing to countless amounts where it was putting pressure on my windpipe, so I opt for a thyroidectomy. I took all my own sheets, towels and wore gloves the first two days. Everything was great up until the Packer game that didn't go so well for me (much better for the Bears fans around here I could hear cheering). For me, this was the only appointment at which anyone even discussed paying up front for services. Crepey skin on neck after thyroidectomy: Will it go away on it's own? At last a surgeon came in and had me sign the forms. However, that information will still be included in details such as numbers of replies. I quickly ordered mac and cheese and mashed potatoes. Overnight was pretty miserable. Sharp stabbing pain in the front of the neck? - Thyroid cancer So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. Below are general instructions for patients who have had thyroid or parathyroid surgery. Oh and the medical bills might be the end of us financially. October 26th it has been a few weeks since I had physical therapy for my knees and I admit my knees are not hurting as much as they were before I started but work has not had workouts for the past 2 weeks so I havent been stressing my knee either. [4] After hours emergency: A/Professor Miller's mobile - emergency only please. I have discovered that this is not a good cancer to have and it has not been easy. Although, I highly recommend going somewhere where you can be alone (not a hotel). Removing lymph nodes in the neck (lymph node dissection). There is all kinds of chaos going on around the ICU as well, which is understandable since many of the patients in that unit are in extremely poor health and have important needs. Clipboard, Search History, and several other advanced features are temporarily unavailable. #1. He has started scheduling me with weekly appointments. undefined will no longer be visible to you including posts, replies, and photos. I am defiantly feeling much more mentally stable after I was put on Synthroid. 2019 Aug 8;49(4):1185-1191. doi: 10.3906/sag-1812-55. An 84-year-old woman presented with chronic neck pain one year after thyroidectomy. No chemo or typical radiation but I had pretty major surgery, will need to take meds the rest of my life and LID and RAI was/is no picnic. 28 April started my normal visits to mental health. Hello, He is now also seeing a doctor at cleveland clinic who specializes in thyroid cancer. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. Exercise therapy for office workers with nonspecific neck pain: a systematic review. Some people are put on T4 when they leave the hospital. I then had to kill another 5 or 6 uncomfortable hours though waiting for the ICU doctor to finally finish my paperwork so I could go home. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. I then used the towel to dry off and threw the blanket over me to keep from exposing myself to the world. What to Expect After Thyroid Surgery | University of Maryland Medical I am from USA but in the Philippines, and I went full Vegan after all of this. They brought him back to see me in pre-op again. I did. Both surgeons recommended almost the exact same treatment plan. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). I go back to my Drs office for results next week and am doing my best trying to stay away from my sweet family and dog. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. Stretching exercises to reduce symptoms of postoperative neck discomfort after thyroid surgery: prospective randomized study. Since then I have had minor vertigo and a small section of my tongue tastes like metal when eating (supposedly this is do to the taste sensor in the ear?). The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. Muscle cramps. Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. People with a history of keloids (excess scar tissue) may experience more scarring after thyroid surgery. I do remember them asking me a few times if I was in pain and giving me more pain medication. He has a burning sensation on his upper chest, shoulder,neck, behind his ear, with sharp pains. That said, I was in very little discomfort and did not even feel that much of a sore throat. The surgical report says, The patient had a 5-cm incision created in line of relaxed skin tension. NSAIDs and duloxetine was not effective for these symptoms. However, since my surgery, I've been hit with insomnia. They said let the steri-strip fall off on its own and it fell off today. I am not sure if TMJ or other dental problem vs the salivary glands. My Experience with thyroid cancer - so far: Papillary and follicular thyroid cancer (differentiated), Multiple endocrine neoplasia type 2 (MEN2), Mental challenges of living with thyroid cancer, ThyCa fundraising and thyroid cancer research grants. Today it seems very logical to have asked for something like that, but at the time I was just in the frame of mind to wait. I still have poor vocal range and intensity. Neck swelling after thyroidectomy: not always a haematoma Learned its horizontal vertigo or thats what Co. (my torturerphysical theraphist) said. Calcium level 1 day post TT dropped a bit but so far no tingling sensation on the cheeks / jaw, fingers or around my lips, but i'll know more about after my next blood work in a couple of weeks. Thyroid function labs were all within normal range. However, such measures have not been evaluated by randomized controlled trial . Anyway - I am still alone in hotel away from Family after RAI. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). 2. This is because the symptoms are related to the dispersion of the nerves in the area of the surgery. The only good thing is that they have taken me off the Low Iodine Diet and are starting to give my Synthroid. 30 Nov 2011 Official Retirement from Navy. You will experience some discomfort at the incision site as well as a raw or sore throat from the breathing tube that . What is the standard for removing them? Simply put, for me, the only option was the traditional open neck procedure; but, I felt better knowing I'd exhausted that possibility. The problems I have had with the radiation therapy metallic salty taste in mouth and constant dry mouth. He also said he was worried about my balance issue. Questions: I also received some stitches on nerves inside. And yes, I know it could have been worse. Then, they hit me with propofol and the lights went out. I plan on going to my son's hockey practice on Tuesday, working this week, and getting ready to leave for Green Bay for a football game two weeks from today. A randomized controlled trial was conducted. Should other lymphnodes in the .7mm range be suspect as well? So, I might be called to come in early. So he sent me for Thyroid level tests and a Thyroid ultrasound. I had a Total Thyroidectomy around 9 weeks ago for FVPTC, then they ran me hypothyroid for 6 weeks and pushed TSH over 100, then did my RAI 3 weeks ago. I remember getting onto the operating table and the anesthesiologist telling me that she was starting anesthesia. Your thyroid gland makes hormones that control your metabolism, body temperature, and heart rate. PMC My family members tried to reassure me that everything would be ok, but I just couldn't stop thinking thoughts of "what if I don't wake up," "what if I do wake up," "what if they find something incredibly bad inside." PDF Thyroidectomy/ Parathyroidectomy Post-Operative Instructions I really hope you get the feeling that post-op will take good care of you. I'm dizzy like I'm drunk and nauseated. DON'T get a tonsillectomy with your TT. As soon as you can turn your head without pain or difficulty (within about a week . I was there a short time where I met briefly with a surgical nurse, my anesthesiologist, and my surgeon. Just seems like order of operations has been a complete mess. Again - very minor things that don't inhibit me from doing what needs to get done. Another thing I get to consider is that when I get dizzy my knees tense up and start hurting a lot more so now that I am doing the Vestibular training I will be having more knee/leg pains. But, I do with exacting detail remember my first sip of water. Sounded perfectly reasonable to me. Tightness, fullness, painful neck post Thyroidectomy I had RAI in first week of Feb and started with 150 mg of levothyroxin, which was reduced to 125 mg last week after my first follow up. This was a process of 1 10 min neck scan followed by a 40 min full body scan and then a follow-up 10 min scan for an area that wasnt clear on the first scan (guess I moved too much) but I was informed by the tech unofficially that the scans looked clean. The patient underwent total thyroidectomy with central and left lateral neck dissection. The quiet house has really helped me get better quickly. If anyone has / had the same issues, any info on them would be great. I called the Mayo Clinic (all three branches MN, AZ and FL), the University at Loma Linda California, UC San Diego, UCLA, UC Irvine, The University of Miami, Baptist Hospital Miami, Jackson Memorial Hospital Miami, The Texas Institute of Thyroid and Para Thyroid Surgery (Dr. Kuppersmith) and am sure a few more that escape me right now. He admitted that he would have liked to have seen me when I was still had my thyroid issue but we will work from where I am. 14 Months After Thyroidectomy. If skin is not sufficiently retracted after 6 months, anterior neck lift or lower face/neck lift should be a consideration. Two weeks ago I wrote a post about my extreme anxiety preparing for a total thyroidectomy and central neck dissection. Application of the healthcare failure mode and effects analysis system to reduce the incidence of posture syndrome of thyroid surgery. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. But, after some bit of haggling I agreed to a small payment up front (really small - like less than a trip to Costco small) and to pay the balance after my insurance got done with the bill. Thyroid Surgery Recovery, Side Effects, and Complications - Verywell Health September 17th took S. to Madigan for her weight loss surgery; J. came with me to help me through the waiting. In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. I had many thyroid nodules but the largest,cancerous one was 3.8 cm. The reasons for that are in this post https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/its-100-for-sure-cancer-pathology-report-back/ Tender neck : After surgery, it is natural for a patient to minimize . Four weeks after her surgery, the patient presented to our clinic. Numbness or tingling of fingers, toes, or around the mouth. Because I had such an intense spread, my surgical experience was a bit different than others. MeSH The nurse offered me some jello, and that wasn't quite as bad as the water, but it was no picnic either. Ask for prayers. Soon after the diagnosis, I underwent total thyroidectomy with right lateral compartment and central compartment dissection on December 28, 2020. Please enable it to take advantage of the complete set of features! Hi! They did look at the CT scan report and told me that all the radiation was in the neck and that was a good thing and the scan looked clean but I will have to wait for the official follow-up with my endocrinologist on the 18th of June for the Official results. She did not develop other complications of thyroidectomy, such as bleeding, wound infection, vocal cord palsy or hypoparathyroidism. Neck /throat tightness and pressure Total Thyroidectomy 16 . 2010 Oct;(194):1-764. 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? None for cancer, but enough to make me a believer in getting a second opinion. Do they usually biopsy Lymphnodes during TT? 2012 w/ different Endocrinologist, found 6 very large lymph nodes in neck. I called the office to verify that was correct and was told it was. We had to travel to Cleveland Clinic for the surgery on Oct. 28th due to the surgeons here would not do it. Now, remember, I chose the doctor who does up to 500 thyroidectomies per year over the one who only does 50. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. It just takes the right approach. May 4, 2015 7:40 PM. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. September 13th I had my follow-up at Madigan for my ear surgery, I still have dizziness so they scheduled me for a follow-up hearing test as well as a CT scan and some Vestibular (Balance) training. It's a scary place I don't really want to go back to. I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath they decided to operate to remove my right side thyroid this happened on Feb 22 2010. It's hard to raise my head and I couldn't look up at the ceiling. Bethesda, MD 20894, Web Policies 2 days for thyrogen shots then one day for RAI. He took a look at me, said everything looked great and that he was writing a discharge order for me. As my health slowly improves I am starting out my workout regimen again and slowly building my strength back. She was clinically and biochemically euthyroid without any compressive symptoms. I will say the fear I experienced made everything seem like a breeze following the surgery. This close anatomical relationship with the thyroid makes the sympathetic trunk and the middle cervical ganglion vulnerable during thyroidectomy, especially when performed with a central neck dissection for metastatic nodes. After surgery, you may have a scar at the base of your neck. So frustrated and all alone - 2nd guessing what Dr's have done and why. As a complete aside, that bair paws gown they'd put me under was starting to heat up like turkey in a browning bag. She was right, the yogurt was a snap to get down while the apple juice was really painful. Voice affectations after thyroidectomy thyroidectomy surgery side effects 1 Week Post-Op Total Thyroidectomy Had total thyroidectomy Major problems after total Thyroidectomy, very scared =(chest tightness, headache, fatigue - post thyroid surgery Problems swallowing after thyroidectomy. Federal government websites often end in .gov or .mil. The diet is annoying, but even with being ridiculously strict (pretty much only ate fruits, veggies and egg whites), its only for a short time and at least is a good diet. It came back normal non cancerous. Takamura Y, Miyauchi A, Tomoda C, Uruno T, Ito Y, Miya A, Kobayashi K, Matsuzuka F, Amino N, Kuma K. World J Surg. RAI was the next thing that worried me, but once again, I found that it was overly emphasized online. 2005 Jun;29(6):775-9. doi: 10.1007/s00268-005-7722-3. Everyone was extremely professional, everyone was very nice. The transfer team asked me to put the bair paws gown back on and I said no it was too hot. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. If you are taken care of only half as well as was I, then you will be in excellent hands at the hospital. I went home around noon the next day and the hour long drive home wasn't that bad. Also on the 4th I have a physical therapy appointment with one of the technicians and he did another wonderfully painfully session but the next 2 days there was basically no knee pain. Pain medication doesn't agree with him. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy. So, that worked out OK. A month later I had a TT and my tonsils out due to a chronic sore throat. Be careful. A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. Figured I'd chime in with my own experience, since everytime I see posts it sounds like a thyroidectomy is the worst thing in the world and its better just to live with thyroid cancer. On May 14th I went back to Madigan for follow-up CT scans. On the 6th I had my hearing test from my 2nd ear surgery, it came back that my left ear is defiantly almost perfectly recovered (to what bone conduction reads) and said I will not have to worry about hearing aids for a few years at least. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. Life After Thyroid Surgery - Medtronic And yes, after I got out of the hospital and all the heavy-duty painkillers wore off, I had terribly sharp, stabbing pain in my neck. First, let me say, I don't like iced water. Within half an hour I was being wheeled to the elevator to head down to the first floor. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Pretty much the only physical limitations I have are I wouldn't even think about driving for a while, as I can't really look over my shoulder and I sort of walk like Frankenstein or as I like to put it one of my 4 year old's favorite "well-loved" stuffed animals that has his neck sewn on (I sort of do too)! An observational case-control study was carried out. My doctor recommends endoscopy to check how the vocal cords and other nerves have healed inside but I am.just not ready to go back to the hospital yet. I feel very lucky. But I was informed that they would be delay in visits while I was recovering from radiation treatment. The result of the biopsy concluded Papillary Carcinoma. I also had a Nutrition Seminar on the 28th and found out that some of my energy, pain problems might be related with my Vitamin and Mineral levels. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. That was a Tuesday. She was confident that these findings appeared after her thyroid surgery. For now though they cant give me any anti inflammatory meds because I am too close to surgery and I cant take anti inflammatory meds prior to surgery. The visit included an ultra sound and 6 needles biopsy of the mass. TeamInspire Suffice to say, I was very disoriented for about the next 10 minutes. Post-Operative Instructions for Parathyroid Surgery. That's a nice way of saying they put it in a neck wrinkle. Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. An MRI of my neck (ordered by orthopedic due to neck pain) showed not only several herniated bulging discs- but a mass on my right thyroid gland. I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. I really needed people telling me what was going on. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. We were told it is papillary cancer but the aggressive kind, so he will need a pet scan every 6 months. It has been 3 weeks today since his surgery and he is experiencing these symptoms. So, here is a more detailed experience of what just the thyroidectomy was like. Methods: Epub 2022 May 30. Hi! Hi, July 26th Another mental health appointment, another good visit he is defiantly happy with how I am doing and we are figuring out that I probably dont need too many more appointments for now at least. Total Thyroidectomy - What You Need to Know - Drugs.com That said I had this horrible monkey on my back for weeks and I really couldn't shake it. However in addition to no LID, no one ever discussed things like AG, AGant, what TSH is, etc . I was in an intense state of fear at this point after calming down somewhat in the original hospital room. During RAI (I had some lympnodes 1 or 2 not 100% sure) take up Iodine, plus had some small growth in thyroid bed which may be non cancerous. Do others work out as soon as possible? The best part about it was I was prepared for a great deal of pain and I would characterize my condition as "mild discomfort," never going over "2 or 3" on the "pain scale." Fever with a temperature higher than 101.5. Even one of the nurses asked if I'd had the midazolam yet and the anesthesiologist said, yes. This cancer also caused me to put radiation through my entire body possibly damaging me AND my family. We present a case of a patient who returned with a neck swelling 6 days following thyroidectomy and central neck compartment lymphadenectomy for suspected thyroid carcinoma. HHS Vulnerability Disclosure, Help 8600 Rockville Pike I have a hard time falling asleep and staying asleep. Besides a surgical scar in her neck, a physical exam was notable for left upper lid ptosis and anisocoria with the left pupil having a smaller diameter than the right (Figure 1, lower panel). RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. Horners syndrome was described in 1853 by French physiologist Claude Bernard and then by the Swiss ophthalmologist Johann Horner in 1869. Chyle leak is a rare complication of thyroid surgery. He got out the floor roll to start working on my leg muscle as well man that hurts. She reported left upper lid drooping and showed a recent picture with only the right side of her face flushed in a hot summer day (Figure 1, upper panel). I contacted the surgeon-he blamed the post op Percocet. The pain got less and less little by slow. The hospital said I could return to work after 2 days of isolation but my doc said 7 days ( I work with kids and have 2 kids). So, I turned to look at my partner and to make sure he was OK. Im going to try to remember to request a copy of my medical records when I go in a few weeks to see my oncologist, but what numbers does your doctor like to keep you at? I was immediately put on levothyroxin and sent home. Facial and Jaw pain - Thyroid cancer - Inspire You might also have to take supplements after thyroidectomy to balance your calcium levels. An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. 2003 May 21;289(19):2509-16. doi: 10.1001/jama.289.19.2509. Dr H. thinks everything is looking good and she retires on the 19th of Aug. Post Operative Instruction | Thyroid Surgery Melbourne, VIC She says slowing down in terms of socialization and being tied to my desk more has caused me to have bad posture and allow the tension to really build in that area. This is normal and will gradually get better as the wound heals. It has been beyond informative and makes a huge difference knowing there are people out there that understand. I underwent a thyroidectomy and extensive bilateral neck dissection two years ago. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. Then a bunch of insurance crap happened (my entire surgery may not be covered because the ENT was not on my list of docs I could see - this is bs but a completely different story) and I had to start driving an hour away to see an endocrinologist. Furthermore, last night, I was awoken at 3 am by pain in my neck. 2019 Dec;98(51):e18309. I reminded them I was 50 miles away, and they said to keep my phone with me. his right arm had a deep muscle hurt, like a toothache. Before Your thyroid is a butterfly-shaped gland located in the front of your neck. Prior to RAI some surgeons recommend T4 and Thyrogen (which is what my surgeon did at our pre-op visit) and some recommend T3 temporarily and going hypo. 2007 Mar;39(2):126-32. doi: 10.2340/16501977-0015. Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. On the 30th I had Fasting Labs for the blood work the nutritionist wanted. As days pass, I feel that this might not be a good decision. Those are the same medications they give you for a colonoscopy. I visited her in the hospital on the 18th she was looking real worn out that day, but by the 19th when I took Sylvia there she was doing much better.
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